图书情报知识 ›› 2020, Vol. 0 ›› Issue (1): 105-114.doi: 10.13366/j.dik.2020.01.105

• 知识、学习与管理 • 上一篇    下一篇

国外健康科学数据管理实践及启示

赵安琪,付少雄,冯亚飞   

  • 出版日期:2020-01-10 发布日期:2020-02-13

Practices and Inspirations of Health Scientific Data Management Abroad

  • Online:2020-01-10 Published:2020-02-13

摘要: [目的/意义]国外健康科学数据管理实践实现了健康科学数据的高效利用并促进了开放科学的发展,总结国外实践能为国内健康科学数据管理提供借鉴和启示。[研究设计/方法]基于科学数据管理能力成熟度模型和健康科学数据生命周期理论,构建了健康科学数据管理框架,从健康科学数据的管理计划、采集与评价、组织与保存、共享与再利用四个方面分析了国外健康科学数据管理实践。
[结论/发现] 国外基金委、科研机构和图书馆将健康科学数据管理计划提交设为科研项目的必要环节,数据安全保护是国外健康科学数据管理的重要议题。基于国外成熟经验,本研究从加强基金委与科研机构层面的健康科学数据管理计划制定、完善健康科学数据采集与评价体系、依托地方/高校图书馆建设健康科学数据仓储、权衡健康科学数据共享利用与数据安全间关系四个方面对国内健康科学数据管理实践给予建议。[创新/价值]将科学数据管理能力成熟度模型引入健康信息学领域,弥补了图书情报领域对于健康科学数据管理理论和管理实践研究的不足。

关键词: 健康科学数据, 科学数据, 数据管理, 健康科学数据管理框架, 实践体系

Abstract: [Purpose/Significance]Health scientific data has been effectively utilized during its management and practices in foreign countries, which promotes the development of open science. Exploration of their practices can provide reference and enlightenment for the health scientific data management in China.[Design/Methodology]Based on the capability maturity model for scientific data management and the life cycle of health scientific data, this paper built a framework for health scientific data management. It also analyzed the practices of health scientific data management abroad from the perspectives of plans, collection and evaluation, organization and preservation, sharing and reuse.[Findings/Conclusion]Submitting health scientific data management plan is an essential part for research programs in science foundations, research institutions and libraries. Additionally, data security guarantee has been an important issue for health scientific data management abroad. Based on the successful experience of foreign countries, suggestions on health scientific data management in China have been proposed, including strengthening the management of science foundations and research institutions, establishing a perfect data selection and evaluation system, establishing data warehouse based on local and university libraries, as well as balancing the relationship between data sharing and security.[Originality/Value]The capability maturity model of scientific data management was introduced into health informatics, which could make up for the lack of research on theories and practices of health scientific data management in library and information science.

Key words: Health scientific data, Scientific data, Data management, Framework of health scientific data management, Practice system